Kad se male ruke slože, sve se može, sve se može! Iako se naši polaznici neće sjećati originalne pjesme iz kultnog filma, ono što ona simbolizira itekako im je poznato. U našoj Helen Doron školi stalno naglašavamo da djeca osim engleskog usvajaju i vrijednosti koje će ih voditi kroz odrastanje pa sve do kraja života. Učimo dijeliti, pospremati za sobom, poštovati starije osobe, brinuti za okoliš i sva živa bića, biti hrabri i strpljivi i ono najvažnije – empatični i tolerantni!
Početkom školske godine, na jednom od timskih sastanka došlo je na red pitanje: komu ove godine možemo uljepšati Božić i prijedlog da to bude Udruga DEBRA (Društvo oboljelih od bulozne epidermolize) usvojen je jednoglasno! Sve 42 škole u Hrvatskoj oduševljeno su prihvatile prijedlog i počeli smo zajedno osmišljavati kreativne aktivnosti.
Polaznici su na nastavi pomno ukrašavali leptire raznim bojama, šljokicama i naljepnicama s ciljem da im približimo djelovanje Udruge DEBRA, a roditelje smo poticali da direktnom donacijom udruzi zajedno sa svojom djecom i cijelom Helen Doron Hrvatska stanu uz djecu leptire. Odaziv je bio nevjerojatan, a cijela priča postala je još posebnija kada smo saznali da je Vlasta Zmazek, osnivačica i predsjednica Udruge DEBRA ujedno i ponosna Helen Doron baka.
Kako smo imali priliku upoznati divne ljude koji su život podredili ovoj udruzi, zamolili smo izvršnu direktoricu udruge, Branku Blagojević da nam odgovori na nekoliko pitanja o Udruzi i njenom djelovanju.
Koliko dugo već Udruga Debra djeluje u Hrvatskoj?
Društvo oboljelih od bulozne epidermolize DEBRA, osnovano je davne 1996. godine s ciljem povezivanja obitelji oboljelih od bulozne epidermolize. U 27 godina rada udruge brojnim obiteljima koje imaju dijete s buloznom epidermolizom značajno se poboljšala kvaliteta života jer su uključeni u mnoge aktivnosti kao što su Savjetovalište, Psihosocijalna podrška, Besplatan smještaj u Zagrebu, Radna terapija, Organizacija slobodnog vremena, Podrška pri inkluziji u odgojno-obrazovne ustanove, a na inicijativu DEBRE postoji ekspertni tim koji je dodatno educiran za rad s ovom rijetkom dijagnozom.
Zašto naziv “djeca leptiri”?
Imati buloznu epidermolizu (EB) znači imati kožu krhku i ranjivu poput leptirovih krila, zato oboljele često nazivamo i “djeca leptiri”. I najobičnije aktivnosti za njih mogu biti prijetnja od ozljeda i stvaranja novih bolnih rana.
Što je glavna misija udruge?
Obzirom da lijek za buloznu epidermolizu još uvijek ne postoji misija udruge je međusobno povezivanje i organiziranje pomoći i podrške oboljelima i njihovim obiteljima kako bismo im olakšali svakodnevicu i osnažili da žive život, a ne bolest.
Kako netko može podržati djecu leptire?
Djeca leptiri su dio našeg društva, a svjesnost o postojanju njihove bolesti i razumijevanje poteškoća s kojima se nose je prvi i možda najvažniji korak pružanja podrške. Podršku možete pružiti također i podržavajući rad udruge – donacijom, volontiranjem, kupnjom naših proizvoda i širenjem svijesti o djeci leptirima, kao što su nam to učenici Helen Doron škole ove godine i pokazali. Od srca hvala djelatnicima Helen Doron škole na inicijativi, osmišljavanju aktivnosti i uključivanju velikog broja djece i roditelja u ovogodišnju blagdansku priču posvećenu djeci leptirima! Helen Doron učenici prikupili su čak 12.652,50 eura i time osigurali čak 422 radne terapije za djecu leptire.
I za kraj, zašto mislite da je djecu važno učiti empatiji i brizi za druge?
Današnja djeca su svjesna svijeta oko sebe, znatiželjna su, informacije upijaju kao spužve, a naša dužnost je potaknuti ih da razumiju i suosjećaju s drugima u njihovoj okolini. Razvijanje empatije pomaže u razvoju socijalnih vještina, izgradnji odnosa, u stvaranju i održavanju prijateljstva, važan je dio emocionalne inteligencije i na kraju empatična djeca vjerojatnije će se zauzeti za druge koji se suočavaju s poteškoćama i ponuditi podršku. Empatija je vještina koja se uči pa na taj način zajedno gradimo bolje društvo za sve nas jer snažni smo koliko je snažan i najranjiviji pojedinac.
Hvala svim našim polaznicima i njihovim obiteljima što čine svijet boljim mjestom.
Podržite i vi Udrugu DEBRA i osigurajte djeci leptirima ljepšu budućnost: https://www.debra.hr/#donate
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